It doesn’t matter what caused it. Whether it is a sex-linked trait on the X chromosome, that governs immune regulation or an abnormal chromosome 6 that houses the human immune complex, the results are the same: colitis. Whether males express the trait or any sex that inherit it on both sides have it, the body cannot make immunoglobulin to common enteric pathogens and what instills is a chronic diarrhea. Pathologically, the cellular immune system intervenes and a granulomatous reaction occurs in the intestinal lumen that eventually progresses to complete obstruction. This is when surgery is necessary for palliative reasons. Anyone that contracts tuberculosis or pseudomonas of the intestinal tract that has this genetic condition, the results are invariably fatal. Scandinavians exhibit a higher proportion of occurrence because in the cold bacteria don’t thrive and with genetic drift, they lost their ability to combat the bacteria that occur in temperate and tropical regions. This is what my son inherited and this is what happened to him.
My son was autistic. When he was two years old my wife convinced me to leave him with them for a week and when we returned, he was autistic. We raised him in special education and he progressed and everything was fine until his final year in high school.
At the onset of adulthood, the body’s immune system changes and the beauty of strength and youth fall to the stark reality of adulthood. The thymus involutes and the human being with the memory of antigen challenges approaches mature life. His thymus involuted. In his final year of high school, my son developed an intractable diarrhea that would not remit. He was hazed and belittled for his condition and the school gave him a diploma as an act of pity. A regimen of thymosin which is a tri-peptide produced by the thymus gland and establishes antibody memory would have saved him, but my lack of funds and disbelief by the affluent professionals sentenced my son to death. Evidently, they don’t want anyone to reproduce who inherits this condition.
My son had two specialists and the most expensive medical insurance offered by my Wife’s employer but to no avail. He was taking six tablets of Balaside a day with his meals. This is an anti-inflammatory medication that is said to limit bleeding in the gastrointestinal tract. The medication had little effect and eventually produced a generalized osteoporosis as is the side effect of anti-inflammatory agents. They also prescribed Imuran as an agent to limit the granulomatous reaction of the condition. This agent did nothing to help him and he took a pill religiously for ten years. The affluent specialist said antibiotics are not indicated in this condition because the patient eventually develops C.dificile colitis and has to have their colon removed. On the medications they gave him, he eventually had to have drastic surgery anyway. A daily regimen of tetracycline and mercapto-purine would have saved his life. Mercapto-purine is an anti-metabolite that inhibits untoward cell division and bacteria uptake and die. Doxycycline is a broad spectrum antibiotic with a large margin of safety that can be used as a chronic adjunct in unremitting bacterial infections. The affluent expert specialists concluded that the next step in my son’s therapy was to have anti-tumor immunoglobulins and prescribed Humira. After my sons first dose of Humira, he started to bleed through the gastrointestinal tract and had to be hospitalized for five units of whole blood. Then the doctors put him on Stelara. My son was autistic and couldn’t adequately convey what was happening to him but he said he was in less pain with the Stelara so the doctors persisted. My son developed an auto-immune hemolytic anemia and had to be hospitalized for more units of blood. A hematologist was consulted to rule out the presence of Leukemia and they ruled him fit to tolerate more therapy.
Nine years of changing diaper pails for eighteen diapers per day and mopping the bathroom at least once a day occurred. My son was not getting better and the doctors said to continue with the present medication. His condition made him a shut in and he and my other son would go on walks and shopping once a week as a sole outing. This is for nine years and countless doctor visits and procedures. The physicians made a lot of money off his misery.
My son became 26 years of age after living in a little room and playing computer games for nine years. He did finish a career at a community college. We convinced him to attend the community college to pass the time and told him to take online courses but he wanted to take art and the students and instructors hazed him. He tried to hang himself on campus and was admitted to a psychiatric hospital for observation. They put him on Prozac and discharged him. After six years of prodding and coercion my son finished an A.A degree in interdisciplinary studies and this was his pride and joy until his death.
At this point a counselor suggested we enroll our son in social security disability A and B and this helped. His monstrous medical costs were paid for by the state. At age 26, my wife’s employer insurance wouldn’t cover him anymore so we enrolled him in Kaiser Permanente and this move signaled an end to his life. His new gastroenterologist put him on Humira and he had another hemolytic crisis and had to enter the hospital and have more whole units of blood.
It was around Easter time and we noticed our son wouldn’t eat his Easter Candy. He would disguise his condition and vomit up his meal in the bathroom because he was obstructed. This continued for three months and my son got sicker and sicker until we had him admitted for surgery.
After countless colonoscopies with his specialists over the years, that did no more than perforate him and make him bleed, they finally told us his colon was 90% obstructed and he needed surgery. Kaiser Permanente told us they could only do the surgery in a facility hospital so they transferred my son from a Catholic Hospital to a pagan non-denominational one to do the surgery. They told it was either move him or have no surgery. The surgery took eight hours and we thought we would lose him there. He survived and stayed in the hospital for two weeks and then came home. It seems the surgery weakened him so much, that he could not persist and his pallor and gaunt complexion demonstrated his condition.
My autistic son did not have the intelligence to convey his condition and make his therapy, reasonable, rational and realistic. During his hospitalization, we re-arranged his room and got rid of old furniture to make his habitation more livable. I bought him a new gaming laptop and a chair to sit in but he was too sick to sit so he would lie in bed and periodically get out of bed and play on his laptop.
On the Kaiser Permanente website which I was able to assay his care because he made me his guardian, a medical oncologist texted us and said my son had a thrombo-pulmonary embolism. They sent by courier a case of injectable heparin which I was to inject him with twice a day without a treatment end. This was the act that put my son to death. The heparin made his wound and intestines bleed and he was back in the hospital. I made a complaint but they persisted in assigning me an aggressive and non-denominational oncologist
The pathology report came back and said that my son had cancer. The pathologists would not tell us the type of cancer. The whole thing was a mystery. The drugs they prescribed for ten years gave my autistic son cancer and he would die. Against my wishes the oncologist tried to alkylate my son to save him but he said he wanted to die and couldn’t stand it anymore so they put him in palliative care is a hospice. My son wanted to die at home and the hospice brought a hospital bed to his room and he lies there incontinent for two weeks until he died.
The hospice crew are pleasant and helpful but they do not allow any therapy and put their patients to death. My son was given morphine and this gave him a rash over the entirety of his body so they withdrew it and gave him oxycodone. The treatment is lorazepam and oxycodone in syringes squirted into his mouth every six hours. I feel something more than narcotic and sedative is in the syringes that eventually cause a patient to die. My wife and I took shifts to be with our son and administered the cocktail to my son around the clock. We gave him a flashlight because he said he couldn’t see. After about one week, his breathing became more rapid and agonal and his eyes turned up in his head, his blood oxygen percentage dropped, and he gasped one more time and passed away. He was pale, his brow sweaty and his body emaciated and I sat with his corpse until the coroner showed up and took the body away. They were as kind and efficient as they were in the beginning and they removed the hospital be piece by piece and took the oxygen concentrator away from his bedside. I mopped the floor and that was the end of it.
Most doctors are from the upper twenty percent of income population and treat the hourly workers like farm animals. It took two months to get through the voluminous application for Medi-cal and this was for my son, an indigent with no net worth and no income. The medical transportation costs were almost three thousand dollars each for trips from home to hospital and between hospitals. Medical helps pay for these costs. If it wasn’t for social security and medi-cal, my son’s final illness would have bankrupted us. God have mercy on his soul for a short, painful and hopeless life. He didn’t deserve it! For the people, there is only one person who speaks the truth and that is God. The only one that speaks the word of God, his name is Muhammed.